Those were the exact words one of Nikolai's little friends mouth. She is a sweet girl that my good friend babysits. My friend couldn't figure out what this little girl was talking about. She thought she was talking about a toy that Nikolai was playing with. The little girl kept pointing to his hand...
(it is hard to see in this picture, but, it is the left hand. He kindof has it curled up in that pic)
Finally, she got it. She understood. The little girl saw how Nikolai's hand looked like a "claw" to her because of his Amniotic (sp?) banding syndrome. His 3 middle fingers are fused together and he uses that as one and then he uses his thumb and pinky. He can pick up things that you wouldn't believe. So, this sweet little girl wanted a hand just like his because it was cool and it could do so much. I thought that was so precious!! I know kids can be cruel, but, kids can be so sweet and honest and not even know it.
We plan on having his first round of surgeries on his hand this year. They wanted us to hold off a little bit until he put on more weight. With the anesthesia, they wanted him to weigh more. The doctors tell us that it will be a series of operations probably up through 1st grade. It terrifies me for him to have surgery. I have had operations and they have hurt, but, I do not want any of my babies to ever experience that. So, I am very prayerful about it.
Labels: Amniotic Banding Syndrome, life